Methods This protocol describes a two-arm randomised controlled trial. Theoretical underpinnings This study will be underpinned by the model of stress and coping [ 30 — 33 ]. Methods Study design The protocol describes a multicentre, two-arm, assessor-blind randomised controlled trial RCT , with randomisation of family members of residents with dementia rather than residential care facilities.
Open in a separate window. Intervention group Participants in the intervention group will receive a six-session group-based 6 to 10 participants online education intervention. Control group Family members allocated to the control group will be allowed to use community-based resources and irregularly chat with the facility staff but will not be provided with additional interventions, therefore reflecting the current routine care.
Outcome measures Outcome measures will be collected at baseline t 0 , immediately post-intervention t 1 , and six weeks after intervention t 2 , by two trained research assistants Master students of Nursing.
Background characteristics Sociodemographic characteristics of family members and their relative with dementia will be collected at baseline using a self-developed questionnaire. Intervention fidelity and process evaluation The fidelity of intervention implementation will be monitored and assessed.
Data management and analysis Data will be double entered and checked in EpiData 3. Discussion Family members usually face challenges and stressors after institutionalising a relative with dementia, this study will evaluate an online education intervention for Chinese family members of residential care facility residents with dementia.
Acknowledgements We would like to thank Dr. Consent for publication Not applicable. Competing interests The authors declare that they have no competing interests. References 1. Reasons for institutionalization of people with dementia: informal caregiver reports from 8 European countries. J Am Med Dir Assoc. Predictors of long-term care placement in persons with dementia: a systematic review and meta-analysis. Int J Geriatr Psychiatry. Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis.
Int Psychogeriatrics. Best practice in the management of behavioural and psychological symptoms of dementia. Ther Adv Neurol Disord. Moving in: adjustment of people living with dementia going into a nursing home and their families. Being a close family member of a person with dementia living in a nursing home.
J Clin Nurs. Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. Scand J Caring Sci. Bern-Klug M. Living with loss: dementia and the family caregiver. Aust J Adv Nurs. Long-term care placement of dementia patients and caregiver health and well-being. Westacott D, Ragdale S. Transition into permanent care: The effect on the family. Nurs Resid Care. Med Care.
Institution for Patient- and Family-centered Care. What is PFCC? Accessed 15 Aug An evaluation of a family visit education program. J Am Geriatr Soc. Partners in caregiving in a special care environment: cooperative communication between staff and families on dementia units.
A chronic grief intervention for dementia family caregivers in long-term care. West J Nurs Res. A telephone-delivered psychosocial intervention improves dementia caregiver adjustment following nursing home placement. A pilot evaluation of psychosocial support for family caregivers of relatives with dementia in long-term care: the residential care transition module. Res Gerontol Nurs. China J Neurol Sci.
Care services for elderly people with dementia in rural China: a case study. Bull World Health Organ. Eastern versus western control beliefs at work: an investigation of secondary control, socioinstrumental control, and work locus of control in China and the US. Appl Psychol. Challenges of dementia care in China. Bull World Heal Organ. Caregiver distress and associated factors in dementia care in the community setting in China.
Geriatr Nurs Minneap. Overview of dementia care under the three-tier long-term care system of China. Public Health Nurs. Financing institutional long-term care for the elderly in China: a policy evaluation of new models. Health Policy Plan. Dynamics of a stressful encounter: cognitive appraisal, coping, and encounter outcomes. J Pers Soc Psychol. Lazarus RS, Folkman S. Stress, appraisal, and coping.
New York: Springer; Folkman S. The case for positive emotions in the stress process. Anxiety, Stress Coping. Folkman S, Lazarus RS.
An analysis of coping in a middle-aged community sample. J Health Soc Behav. Follow-up of an intervention program for caregivers of a relative with dementia living in a long-term care setting: are there any persistent and delayed effects? Aging Ment Health. Follow-up data collection is underway. The study results will have tangible implications for proprietors, managers and staff from the residential care sector and policy makers. The results have potential to directly benefit the quality of life of both patients and carers.
Tags Type your tag names separated by a space and hit enter. Links Publisher Full Text. Horner B. Almeida OP. Scherer S. Lautenschlager NT. Bretland N. Flett P. PubMed Google Scholar. Jablonski RA, Reed D, Maas ML: Care intervention for older adults with Alzheimer's disease and related dementias: effect of family involvement on cognitive and functional outcomes in nursing homes.
Journal of gerontological nursing. Int J Geriatr Psychiatry. Journal of the American Medical Directors Association. Snowdon J: A follow-up survey of psychotropic drug use in Sydney nursing homes. Med J Aust. BMC Geriatr. Age and ageing. J Mental Health Aging. Journal of Clinical Epidemiology. Article Google Scholar. A comparison of the views of older people with dementia, staff and family carers.
Download references. The authors thank Dr Kieran McCaul for specialised bio-statistical advice. You can also search for this author in PubMed Google Scholar. Correspondence to Christopher D Beer. CDB drafted the manuscript. All authors contributed to critical review of the manuscript. This article is published under license to BioMed Central Ltd.
Reprints and Permissions. Beer, C. Trials 11, 63 Download citation. Received : 03 March Accepted : 26 May Published : 26 May Anyone you share the following link with will be able to read this content:. Sorry, a shareable link is not currently available for this article. Provided by the Springer Nature SharedIt content-sharing initiative.
View archived comments 1. Skip to main content. Search all BMC articles Search. Download PDF. Results Recruitment of people with dementia, cared for by staff in 39 residential facilities and 55 GPs, was undertaken between May and July Discussion The study results will have tangible implications for proprietors, managers and staff from the residential care sector and policy makers.
Background Many Australians with dementia, nearly half, live in residential care [ 1 ]. Randomisation Randomisation will be carried out in a factorial fashion. Intervention A detailed qualitative research study has been undertaken to determine the perceived needs of learners [ 16 ].
The main topics of the educational programs were: communication with residents and family members personal care and activities positive values behaviours of concern pain management dementia, depression and delirium effective working between GPs and RCF.
Outcomes Outcomes will be measured by blinded research assistants. Sample size and statistical analysis Training for care providers has been associated with a 0. Results Recruitment of people with dementia, living in 39 care facilities and cared for by 55 GPs is now complete. Figure 1. Study Flow Chart.
Full size image. Table 1 Participant Characteristics. Full size table. Discussion This project will use a pragmatic research agenda to address highly relevant research questions. Conclusion Many people with dementia require residential care. References 1. Article PubMed Google Scholar 4. Article PubMed Google Scholar 6. Article PubMed Google Scholar 7. Article PubMed Google Scholar 8. PubMed Google Scholar 9. Article PubMed Google Scholar Google Scholar Article Google Scholar Article Google Scholar Download references.
View author publications. Additional information Competing interests The authors declare that they have no competing interests.
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